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Ebola Patient Families Wait for Info   09/30 06:11

   MONROVIA, Liberia (AP) -- First the ring tone echoed outside the 
barbed-wire-topped walls of the Ebola clinic. Then came the wails of grief, as 
news spread that 31-year-old Rose Johnson was dead just days after she was 
brought here unconscious by relatives.

   Soon her mother's sorrow became so unbearable, her body so limp and heavy, 
that even her two other daughters could no longer help her stand.

   There had been no official confirmation of Rose's death from hospital 
officials, no time for someone to explain her final moments, just word from a 
family acquaintance inside who said her bed had been cleared that morning to 
make way for a new patient.

   Her grieving husband stood in a daze outside the hospital, scratching air 
time cards so he could use his mobile phone to notify other family members.

   "I've been here every day, every day, every day," says David Johnson, 31, 
now left with the couple's 18-month-old daughter Divine. "Up till now there has 
been no information. How can I believe she is dead?"

   As the death toll from Ebola soars, crowded clinics are turning over beds as 
quickly as patients are dying. This leaves social workers and psychologists 
struggling to keep pace and notify families, who must wait outside for fear of 
contagion. Also, under a government decree, all Ebola victims must be cremated, 
leaving families in unbearable pain with no chance for goodbye, no body to bury.

   "People are standing around for weeks. Nobody is coming to them. There 
should be a system in place for disseminating information but there is 
nothing," says Kanyean Molton Farley, a 39-year-old community leader in one of 
Monrovia's hardest-hit neighborhoods.

   At least 1,830 people are believed to have died from the disease here in 
Liberia, and many fear the actual toll is far higher and rising fast. A recent 
update from the World Health Organization showed that more than half the cases 
in Liberia happened in the preceding 21 days.

   Doctors Without Borders in Monrovia has three phone lines to answer calls 
from worried families. The group asks relatives to come in person for updates 
on their loved ones inside the 160-bed facility, but sometimes they get news 
from friends or family inside instead, says Athena Viscusi, a clinical social 
worker.

   "We encourage them to come and meet with a counselor," says Viscusi. She 
notes that Doctors Without Borders hopes eventually to photograph the dead 
before cremation to help with identification.

   Dozens of family members show up each day at the gates of the city's Ebola 
clinics, anxiously clutching cell phones and desperate for any update on their 
loved ones inside. They pace back and forth, leaving only to buy more phone 
credit. All the while, they keep a safe distance from those stricken with Ebola 
who huddle by the gates in hopes of gaining a coveted bed inside and a chance 
at life.

   Linda Barlea, 32, is desperate to know what has become of her boyfriend of 
13 years. One by one his family has been decimated by Ebola: First his brother, 
then his mother, then a sister, then another brother. Only the 7-year-old niece 
Miamu has survived, and then was chased from Barlea's home by fearful neighbors.

   Barlea's mother called the clinic's official hotline for patient information 
and was told his name appeared on the list of the dead. Barlea says she needs 
to hear it for herself. But every time she calls now, she gets a busy signal. 
So she has shown up here, demanding answers before she will leave.

   The lack of official confirmation has led to disastrous misinformation in 
some cases: Julius Prout's family held two wakes for him after being told by a 
security guard at the clinic that he was dead. Family members gathered first 
for several days at his parents' home, then at his uncle's.

   Instead, health workers had merely moved him to another section of the 
hospital and burned his cell phone along with his belongings for fear of 
contamination.

   When the 32-year-old nurse regained his strength almost a week later, the 
first thing he saw was a Bible given to him by a nurse. He says it is no 
coincidence that he opened it randomly to John 11, when Jesus raises Lazarus 
from the dead.

   Prout then borrowed a phone to call the family. All he could hear was the 
deafening sound of loved ones yelling and cheering in the background.

   "We rejoiced and were so grateful that he was alive," says his uncle, 
Alexander Howard, 57.

   Rumors only intensify the hellish wait for those like Alieu Kenneh, who took 
his 24-year-old pregnant wife to four different hospitals before they finally 
found a place for her at Island Clinic, the capital's latest Ebola treatment 
center.

   Several days after Mandou was admitted, word spread that a pregnant women 
inside had died. Surely, though, there was more than one. Could it be her?

   The last image he has of her, replaying in his mind, is as they slammed the 
ambulance door shut, telling him there wasn't enough room for him to join her 
on the ride. Then a disinfection team sprayed the bewildered man left watching 
it drive away.

   Kenneh held vigil outside her clinic for seven days.. One week after she was 
admitted, the phone finally rang. The doctor said she had died five days 
earlier after going into labor. The baby had not made it.

   Kenneh, who met his wife when the two were teenagers living in a refugee 
camp in neighboring Guinea, now can't bear to go back to the apartment they 
shared. Her photos and clothes are everywhere, along with the blankets they had 
bought for the baby.

   On top of it, Monday was her birthday. She should have turned 25, he says in 
tears. She was so excited to become a mother, and didn't know the sex of the 
child she was carrying. A nurse told her husband it was a boy.

   "We give them to God and we cannot say anything more than that," he says.

   The tiny baby's body was cremated before Kenneh even knew his son had been 
born.


(KA)


 
 
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